---
title: Diversity, Equity, and Inclusion (DEI) Organizational Readiness Quiz
description: he Rare Disease Diversity Coalition (RDDC) is here to help you and your organization implement diversity, equity, and inclusion strategies and tactics to ensure that you are serving all patients, caregivers, and communities.
---

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# Diversity, Equity, and Inclusion (DEI) Organizational Readiness Quiz

# Diversity, Equity, and Inclusion (DEI) Organizational Readiness Quiz

February 20, 2024

## Are you DEI ready?

Meeting the needs of diverse populations is critical to serving the rare disease community. The Rare Disease Diversity Coalition (RDDC) is here to help you and your organization implement diversity, equity, and inclusion strategies and tactics to ensure that you are serving all patients, caregivers, and communities. Diversity extends beyond race and ethnicity to include age, gender, geographic location, sexual orientation, disability, etc. 

#### Take the short anonymous quiz below to find out if your organization is “DEI Ready”.

 

<section data-block="MultipleChoice"><h3>Has your organization conducted research to understand the prevalence of your rare disease in diverse populations (i.e., race/ethnicity, age, gender, sexual orientation, geography, disability, etc.)?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization have a clear understanding of DEI strategies and tactics?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization's strategic plan include DEI goals?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization measure and evaluate DEI goals?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Has your organization prioritized diversity, equity, and inclusion in the workplace (i.e., recruitment, hiring, board composition, etc.)?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization promote DEI activities and initiatives internally and externally?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization currently create inclusive content?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization actively engage diverse individuals and communities?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization collect demographic data to inform outreach and engagement strategies, programming, and/or clinical trial participation?</h3><ul><li>Yes</li><li>No</li></ul></section><section data-block="MultipleChoice"><h3>Does your organization have a clinical trial recruitment and promotion checklist to reach diverse populations?</h3><ul><li>Yes</li><li>No</li></ul></section>

###### Tags:

Post by [Rare Disease Diversity Coalition](https://www.rarediseasediversity.org/blog/author/rare-disease-diversity-coalition)   
 February 20, 2024

## Our Partners

[![The Aarskog Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Aarskog-Foundation.png?width=150&height=80&name=The-Aarskog-Foundation.png) ](https://www.aarskogsyndromefoundation.co.uk)

[![association-of-black-cardiologists](https://www.rarediseasediversity.org/hs-fs/hubfs/association-of-black-cardiologists.png?width=150&height=80&name=association-of-black-cardiologists.png) ](https://abcardio.org)

[![abcuro logo: Click to visit their web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/abcuro.png?width=150&height=80&name=abcuro.png) ](https://abcuro.com)

[![accessia health logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/accessia-health.png?width=150&height=80&name=accessia-health.png) ](https://accessiahealth.org)

[![The Akari Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Akari-Foundation.png?width=150&height=80&name=The-Akari-Foundation.png) ](https://theakarifoundation.org)

[![ALS Association](https://www.rarediseasediversity.org/hs-fs/hubfs/ALS-Association.png?width=150&height=80&name=ALS-Association.png) ](https://www.als.org)

[![Alliance for Black NICU Families](https://www.rarediseasediversity.org/hs-fs/hubfs/Alliance-for-Black-NICU-Families.png?width=150&height=80&name=Alliance-for-Black-NICU-Families.png) ](https://blacknicufamilies.org)

[![amgen](https://www.rarediseasediversity.org/hs-fs/hubfs/amgen.png?width=150&height=80&name=amgen.png) ](https://www.amgen.com)

[![American Kidney Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/americankidney.png?width=150&height=80&name=americankidney.png) ](https://www.kidneyfund.org)

[![American Muslim Health Professionals (AMHP)](https://www.rarediseasediversity.org/hs-fs/hubfs/American-Muslim-Health-Professionals-AMHP.png?width=150&height=80&name=American-Muslim-Health-Professionals-AMHP.png) ](https://amhp.us)

[![Amicus](https://www.rarediseasediversity.org/hs-fs/hubfs/Amicus.png?width=150&height=80&name=Amicus.png) ](https://amicusrx.com)

[![ArgenX](https://www.rarediseasediversity.org/hs-fs/hubfs/ArgenX.png?width=150&height=80&name=ArgenX.png) ](https://www.argenx.com)

[![Association of American Indian Physicians](https://www.rarediseasediversity.org/hs-fs/hubfs/Association-of-American-Indian-Physicians.png?width=150&height=80&name=Association-of-American-Indian-Physicians.png) ](https://www.aaip.org)

[![The Assistance Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Assistance-Fund.png?width=150&height=80&name=The-Assistance-Fund.png) ](https://tafcares.org)

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[![Astria Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Astria-Therapeutics.png?width=150&height=80&name=Astria-Therapeutics.png) ](https://astriatx.com)

[![The Balm in Gilead Inc. ](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Balm-in-Gilead-Inc.png?width=150&height=80&name=The-Balm-in-Gilead-Inc.png) ](https://www.balmingilead.org)

[![bridgebio](https://www.rarediseasediversity.org/hs-fs/hubfs/bridgebio.png?width=150&height=80&name=bridgebio.png) ](https://bridgebio.com)

[![Boehringer Ingelheim](https://www.rarediseasediversity.org/hs-fs/hubfs/Boehringer-Ingelheim.png?width=150&height=80&name=Boehringer-Ingelheim.png) ](https://www.boehringer-ingelheim.com)

[![CACNA1A Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/CACNA1A-Foundation.png?width=150&height=80&name=CACNA1A-Foundation.png) ](https://www.cacna1a.org)

[![Caring Families](https://www.rarediseasediversity.org/hs-fs/hubfs/Caring-Families.png?width=150&height=80&name=Caring-Families.png) ](https://www.carefamilies.com)

[![Childrens National Hospital](https://www.rarediseasediversity.org/hs-fs/hubfs/Childrens-National-Hospital-2.png?width=150&height=80&name=Childrens-National-Hospital-2.png) ](https://childrensnational.org)

[![American College of CHEST Physicians](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Chest-American-College.png?width=150&height=80&name=Chest-American-College.png) ](https://www.chestnet.org)

[![CombinedBrain](https://www.rarediseasediversity.org/hs-fs/hubfs/CombinedBrain.png?width=150&height=80&name=CombinedBrain.png) ](https://combinedbrain.org)

[![Cincinnati Children's](https://www.rarediseasediversity.org/hs-fs/hubfs/Cincinnati-Childrens.png?width=150&height=80&name=Cincinnati-Childrens.png) ](https://www.cincinnatichildrens.org)

[![Couch Pennies Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Couch-Pennies-Foundation.png?width=150&height=80&name=Couch-Pennies-Foundation.png) ](https://www.facebook.com/couchpenniesfoundation)

[![National CMV Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/National-CMV-Foundation.png?width=150&height=80&name=National-CMV-Foundation.png) ](https://www.nationalcmv.org)

[![Elevate-Advocacy](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Elevate-Advocacy.png?width=150&height=80&name=Elevate-Advocacy.png) ](https://www.elevateadvocacy.com)

[![Entrada Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Entrada-Therapeutics.png?width=150&height=80&name=Entrada-Therapeutics.png) ](https://www.entradatx.com)

[![Epilepsy Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Epilepsy-Foundation.png?width=150&height=80&name=Epilepsy-Foundation.png) ](https://www.epilepsy.com)

[![Expecting Health](https://www.rarediseasediversity.org/hs-fs/hubfs/Expecting-Health.png?width=150&height=80&name=Expecting-Health.png) ](https://www.expectinghealth.org)

[![EveryLife Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/EveryLife-Foundation.png?width=150&height=80&name=EveryLife-Foundation.png) ](https://everylifefoundation.org)

[![E.WE Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/E-WE-Foundation.png?width=150&height=80&name=E-WE-Foundation.png) ](https://theewefoundation.org)

[![FSHD Society](https://www.rarediseasediversity.org/hs-fs/hubfs/FSHD-Society.png?width=150&height=80&name=FSHD-Society.png) ](https://www.fshdsociety.org)

[![Prader-Willi-Research](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Prader-Willi-Research.png?width=150&height=80&name=Prader-Willi-Research.png) ](https://www.fpwr.org/)

[![Foundation for Sarcoidosis Research](https://www.rarediseasediversity.org/hs-fs/hubfs/Foundation-for-Sarcoidosis-Research.png?width=150&height=80&name=Foundation-for-Sarcoidosis-Research.png) ](https://www.stopsarcoidosis.org)

[![GeneDx](https://www.rarediseasediversity.org/hubfs/RDDC/GeneDx.svg) ](https://www.genedx.com)

[![GFPD (Global Foundation for Peroxisomal Disorders)](https://www.rarediseasediversity.org/hs-fs/hubfs/GFPD-Global-Foundation-for-Peroxisomal-Disorders.png?width=150&height=80&name=GFPD-Global-Foundation-for-Peroxisomal-Disorders.png) ](https://thegfpd.org)

[![Gillette Childrens](https://www.rarediseasediversity.org/hs-fs/hubfs/Gillette-Childrens.png?width=150&height=80&name=Gillette-Childrens.png) ](https://www.gillettechildrens.org)

[![Glaukos Corporation logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Glaukos-Corporation.png?width=150&height=80&name=Glaukos-Corporation.png) ](https://www.glaukos.com)

[![Global Genes](https://www.rarediseasediversity.org/hs-fs/hubfs/Global-Genes.png?width=150&height=80&name=Global-Genes.png) ](https://globalgenes.org)

[![Global Liver Institute](https://www.rarediseasediversity.org/hs-fs/hubfs/Global-Liver-Institute.png?width=150&height=80&name=Global-Liver-Institute.png) ](https://globalliver.org)

[![Glo Preemies](https://www.rarediseasediversity.org/hs-fs/hubfs/Glo-Preemies.png?width=150&height=80&name=Glo-Preemies.png) ](https://www.glopreemies.org)

[![Guthy-Jackson](https://www.rarediseasediversity.org/hs-fs/hubfs/Guthy-Jackson.png?width=150&height=80&name=Guthy-Jackson.png) ](https://guthyjacksonfoundation.org/)

[![Click to view Harrmony Biosciences web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Harrmony-Biosciences.png?width=150&height=80&name=Harrmony-Biosciences.png) ](https://www.harmonybiosciences.com)

[![Histiocytosis Association](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Histiocytosis-Association.png?width=150&height=80&name=Histiocytosis-Association.png) ](https://histio.org)

[![Holland & Knight](https://www.rarediseasediversity.org/hs-fs/hubfs/hklaw.png?width=150&height=80&name=hklaw.png) ](https://www.hklaw.com/en)

[![Immune Deficiency Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Immune-Deficiency-Foundation.png?width=150&height=80&name=Immune-Deficiency-Foundation.png) ](https://primaryimmune.org)

[![indousrare](https://www.rarediseasediversity.org/hs-fs/hubfs/indousrare.png?width=150&height=80&name=indousrare.png) ](https://www.indousrare.org)

[![Click to view ionis web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/ionis.png?width=150&height=80&name=ionis.png) ](https://ionis.com)

[![The LAM Foudation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/LAM-Foudation.webp?width=150&height=80&name=LAM-Foudation.webp) ](https://www.thelamfoundation.org)

[![LGS Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/LGS-Foundation.png?width=150&height=80&name=LGS-Foundation.png) ](https://www.lgsfoundation.org)

[![MANA A National Latina Organization](https://www.rarediseasediversity.org/hs-fs/hubfs/MANA-A-National-Latina-Organization.png?width=150&height=80&name=MANA-A-National-Latina-Organization.png) ](https://www.hermana.org)

[![​Melanin Children Matter Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/%E2%80%8BMelanin-Children-Matter.png?width=150&height=80&name=%E2%80%8BMelanin-Children-Matter.png) ](https://www.melaninchildrenmatter.org)

[![Mission-Cure](https://www.rarediseasediversity.org/hs-fs/hubfs/Mission-Cure.png?width=150&height=80&name=Mission-Cure.png) ](https://mission-cure.org)

[![Muscular Dystrophy Association](https://www.rarediseasediversity.org/hs-fs/hubfs/Muscular-Dystrophy-Association.png?width=150&height=80&name=Muscular-Dystrophy-Association.png) ](https://www.mda.org)

[![Myasthenia Gravis Foundation of America, Inc](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Myasthenia-Gravis-Foundation.png?width=150&height=80&name=Myasthenia-Gravis-Foundation.png) ](https://myasthenia.org)

[![nac (National Alliance for Caregiving)](https://www.rarediseasediversity.org/hs-fs/hubfs/nac-National-Alliance-for-Caregiving.png?width=150&height=80&name=nac-National-Alliance-for-Caregiving.png) ](https://www.caregiving.org)

[![NBNA (National Black Nurses Association Inc.)](https://www.rarediseasediversity.org/hs-fs/hubfs/NBNA.png?width=150&height=80&name=NBNA.png) ](https://www.nbna.org)

[![National Genetics Education and Family Support ](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Genetics-Education-2.png?width=150&height=80&name=National-Genetics-Education-2.png) ](https://nationalfamilycenter.org)

[![NHMA (National Hispanic Medical Association)](https://www.rarediseasediversity.org/hs-fs/hubfs/NHMA.png?width=150&height=80&name=NHMA.png) ](https://www.nhmamd.org)

[![National-Bleeding-Disorders](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Bleeding-Disorders.png?width=150&height=80&name=National-Bleeding-Disorders.png) ](https://www.hemophilia.org/who-we-are)

[![National Institute of Health](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Institure-of-Health.png?width=150&height=80&name=National-Institure-of-Health.png) ](https://www.nih.gov)

[![NMA (National Medical Association)](https://www.rarediseasediversity.org/hs-fs/hubfs/NMA.png?width=150&height=80&name=NMA.png) ](https://www.nmanet.org)

[![Nephcure Kidney International](https://www.rarediseasediversity.org/hs-fs/hubfs/Nephcure-Kidney-International.png?width=150&height=80&name=Nephcure-Kidney-International.png) ](https://nephcure.org)

[![NORD (National Organization for Rare Disorders)](https://www.rarediseasediversity.org/hs-fs/hubfs/NORD.png?width=150&height=80&name=NORD.png) ](https://rarediseases.org)

[![Novartis Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Novartis.png?width=150&height=80&name=Novartis.png) ](https://www.novartis.com)

[![PAN (Patient Access Network) Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/PAN.png?width=150&height=80&name=PAN.png) ](https://www.panfoundation.org)

[![PAF (Patient Advocate Foundation)](https://www.rarediseasediversity.org/hs-fs/hubfs/PAF-Patient-Advocate-Foundation.png?width=150&height=80&name=PAF-Patient-Advocate-Foundation.png) ](https://www.patientadvocate.org)

[![Patients Rising logo](https://www.rarediseasediversity.org/hs-fs/hubfs/Patients-Rising.png?width=150&height=80&name=Patients-Rising.png) ](https://www.patientsrising.org)

[![pcori (Patient centered outcomes research institute)](https://www.rarediseasediversity.org/hs-fs/hubfs/pcori.png?width=150&height=80&name=pcori.png) ](https://www.pcori.org)

[![Prevent Blindness](https://www.rarediseasediversity.org/hs-fs/hubfs/Prevent-Blindness.png?width=150&height=80&name=Prevent-Blindness.png) ](https://preventblindness.org)

[![Rare Rising Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/RareRising-2-logo-1.webp?width=150&height=80&name=RareRising-2-logo-1.webp) ](https://rarerising.org)

[![SAPHA](https://www.rarediseasediversity.org/hs-fs/hubfs/SAPHA.png?width=150&height=80&name=SAPHA.png) ](https://www.sapha.org)

[![Scleroderma Research Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Scleroderma-Research-Foundation.png?width=150&height=80&name=Scleroderma-Research-Foundation.png) ](https://srfcure.org)

[![Scleroderma United](https://www.rarediseasediversity.org/hs-fs/hubfs/Scleroderma-United.png?width=150&height=80&name=Scleroderma-United.png) ](https://www.sclerounited.us)

[![SCARED (Sickle Cell Reproductive Health Education Directive)](https://www.rarediseasediversity.org/hs-fs/hubfs/SCRED.png?width=150&height=80&name=SCRED.png) ](https://sicklecellred.org)

[![Sickle inspired](https://www.rarediseasediversity.org/hs-fs/hubfs/Sickle-inspired.png?width=150&height=80&name=Sickle-inspired.png) ](https://www.instagram.com/sickle.inspired/?hl=en)

[![Sobi](https://www.rarediseasediversity.org/hs-fs/hubfs/Sobi.png?width=150&height=80&name=Sobi.png) ](https://www.sobi.com/en)

[![Sociedad Hispana de Enfermedades Raras](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Sociedad-Hispana-de-Enfermedades-Raras.png?width=150&height=80&name=Sociedad-Hispana-de-Enfermedades-Raras.png) ](https://www.hispanicsocietyrarediseases.org)

[![Sumaira-Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Sumaira-Foundation.png?width=150&height=80&name=Sumaira-Foundation.png) ](https://www.sumairafoundation.org)

[![SynGap Research Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/SynGap-Research-Fund.png?width=150&height=80&name=SynGap-Research-Fund.png) ](https://www.syngapresearchfund.org)

[![the waiting room entertainment](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/the-waiting-room-entertainment.png?width=150&height=80&name=the-waiting-room-entertainment.png) ](https://www.linkedin.com/in/thewaitingroomentertainment)

[![Think Genetic Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Think-Genetic-Foundation.png?width=150&height=80&name=Think-Genetic-Foundation.png) ](https://thinkgenetic.org)

[![Travere Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Travere-Therapeutics.png?width=150&height=80&name=Travere-Therapeutics.png) ](https://travere.com)

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[![A Twist of Fate](https://www.rarediseasediversity.org/hs-fs/hubfs/A-Twist-of-Fate.png?width=150&height=80&name=A-Twist-of-Fate.png) ](http://www.atwistoffate-ats.org)

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[![UDNF (Undiagnosed Diseases Network Foundation)](https://www.rarediseasediversity.org/hs-fs/hubfs/UDNF.png?width=150&height=80&name=UDNF.png) ](https://commonfund.nih.gov/diseases)

[![The Vasculitis Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Vasculitis-Foundation.png?width=150&height=80&name=Vasculitis-Foundation.png) ](https://vasculitisfoundation.org)

[![VHL Alliance](https://www.rarediseasediversity.org/hs-fs/hubfs/VHL-Alliance.png?width=150&height=80&name=VHL-Alliance.png) ](https://www.vhl.org)

[![Vertex](https://www.rarediseasediversity.org/hs-fs/hubfs/Vertex.png?width=150&height=80&name=Vertex.png) ](https://www.vrtx.com)

[![Watts Group LLC](https://www.rarediseasediversity.org/hs-fs/hubfs/Watts-Group-LLC.png?width=150&height=80&name=Watts-Group-LLC.png) ](https://www.wattsgroupllc.com)

[![ZS logo: Click to visit their web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/ZS.png?width=150&height=80&name=ZS.png) ](https://www.zs.com)

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