---
title: "RDDC: NMQF Evaluation"
description: To help us improve future programming and better serve the needs of our community, please take a few minutes to complete our post-event evaluation form.
image: https://www.rarediseasediversity.org/hubfs/Events-Feature-RDDC.jpg
---

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# RDDC NMQF Summit Evaluation

![RDDC Events](https://www.rarediseasediversity.org/hs-fs/hubfs/Titlebar-Events-TB.png?width=519&height=431&name=Titlebar-Events-TB.png)

## Upcoming Events

On behalf of the Rare Disease Diversity Coalition, thank you for joining us at the** **National Minority Quality Forum Leadership Summit on Health Disparities, Rare Disease Track on Tuesday, April 29, 2025 in Washington, DC.

Your presence and engagement made this important day of dialogue, learning, and collaboration incredibly meaningful. From thought-provoking discussions on clinical trial diversity and grassroots advocacy to actionable insights on healthcare policy and community engagement, we hope the summit left you inspired and equipped to continue advancing equity in rare disease care.

To help us improve future programming and better serve the needs of our community, please take a few minutes to complete our post-event evaluation form.

## Our Partners

[![The Aarskog Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Aarskog-Foundation.png?width=150&height=80&name=The-Aarskog-Foundation.png) ](https://www.aarskogsyndromefoundation.co.uk)

[![association-of-black-cardiologists](https://www.rarediseasediversity.org/hs-fs/hubfs/association-of-black-cardiologists.png?width=150&height=80&name=association-of-black-cardiologists.png) ](https://abcardio.org)

[![abcuro logo: Click to visit their web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/abcuro.png?width=150&height=80&name=abcuro.png) ](https://abcuro.com)

[![accessia health logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/accessia-health.png?width=150&height=80&name=accessia-health.png) ](https://accessiahealth.org)

[![The Akari Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Akari-Foundation.png?width=150&height=80&name=The-Akari-Foundation.png) ](https://theakarifoundation.org)

[![ALS Association](https://www.rarediseasediversity.org/hs-fs/hubfs/ALS-Association.png?width=150&height=80&name=ALS-Association.png) ](https://www.als.org)

[![Alliance for Black NICU Families](https://www.rarediseasediversity.org/hs-fs/hubfs/Alliance-for-Black-NICU-Families.png?width=150&height=80&name=Alliance-for-Black-NICU-Families.png) ](https://blacknicufamilies.org)

[![amgen](https://www.rarediseasediversity.org/hs-fs/hubfs/amgen.png?width=150&height=80&name=amgen.png) ](https://www.amgen.com)

[![American Kidney Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/americankidney.png?width=150&height=80&name=americankidney.png) ](https://www.kidneyfund.org)

[![American Muslim Health Professionals (AMHP)](https://www.rarediseasediversity.org/hs-fs/hubfs/American-Muslim-Health-Professionals-AMHP.png?width=150&height=80&name=American-Muslim-Health-Professionals-AMHP.png) ](https://amhp.us)

[![Amicus](https://www.rarediseasediversity.org/hs-fs/hubfs/Amicus.png?width=150&height=80&name=Amicus.png) ](https://amicusrx.com)

[![ArgenX](https://www.rarediseasediversity.org/hs-fs/hubfs/ArgenX.png?width=150&height=80&name=ArgenX.png) ](https://www.argenx.com)

[![Association of American Indian Physicians](https://www.rarediseasediversity.org/hs-fs/hubfs/Association-of-American-Indian-Physicians.png?width=150&height=80&name=Association-of-American-Indian-Physicians.png) ](https://www.aaip.org)

[![The Assistance Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Assistance-Fund.png?width=150&height=80&name=The-Assistance-Fund.png) ](https://tafcares.org)

[![Sickle Cell Disease Association of America](https://www.rarediseasediversity.org/hs-fs/hubfs/Sickle-Cell%20Disease-Association-of-America.png?width=150&height=80&name=Sickle-Cell%20Disease-Association-of-America.png) ](https://www.sicklecelldisease.org)

[![Astria Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Astria-Therapeutics.png?width=150&height=80&name=Astria-Therapeutics.png) ](https://astriatx.com)

[![The Balm in Gilead Inc. ](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Balm-in-Gilead-Inc.png?width=150&height=80&name=The-Balm-in-Gilead-Inc.png) ](https://www.balmingilead.org)

[![bridgebio](https://www.rarediseasediversity.org/hs-fs/hubfs/bridgebio.png?width=150&height=80&name=bridgebio.png) ](https://bridgebio.com)

[![Boehringer Ingelheim](https://www.rarediseasediversity.org/hs-fs/hubfs/Boehringer-Ingelheim.png?width=150&height=80&name=Boehringer-Ingelheim.png) ](https://www.boehringer-ingelheim.com)

[![CACNA1A Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/CACNA1A-Foundation.png?width=150&height=80&name=CACNA1A-Foundation.png) ](https://www.cacna1a.org)

[![Caring Families](https://www.rarediseasediversity.org/hs-fs/hubfs/Caring-Families.png?width=150&height=80&name=Caring-Families.png) ](https://www.carefamilies.com)

[![Childrens National Hospital](https://www.rarediseasediversity.org/hs-fs/hubfs/Childrens-National-Hospital-2.png?width=150&height=80&name=Childrens-National-Hospital-2.png) ](https://childrensnational.org)

[![American College of CHEST Physicians](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Chest-American-College.png?width=150&height=80&name=Chest-American-College.png) ](https://www.chestnet.org)

[![CombinedBrain](https://www.rarediseasediversity.org/hs-fs/hubfs/CombinedBrain.png?width=150&height=80&name=CombinedBrain.png) ](https://combinedbrain.org)

[![Cincinnati Children's](https://www.rarediseasediversity.org/hs-fs/hubfs/Cincinnati-Childrens.png?width=150&height=80&name=Cincinnati-Childrens.png) ](https://www.cincinnatichildrens.org)

[![Couch Pennies Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Couch-Pennies-Foundation.png?width=150&height=80&name=Couch-Pennies-Foundation.png) ](https://www.facebook.com/couchpenniesfoundation)

[![National CMV Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/National-CMV-Foundation.png?width=150&height=80&name=National-CMV-Foundation.png) ](https://www.nationalcmv.org)

[![Elevate-Advocacy](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Elevate-Advocacy.png?width=150&height=80&name=Elevate-Advocacy.png) ](https://www.elevateadvocacy.com)

[![Entrada Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Entrada-Therapeutics.png?width=150&height=80&name=Entrada-Therapeutics.png) ](https://www.entradatx.com)

[![Epilepsy Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Epilepsy-Foundation.png?width=150&height=80&name=Epilepsy-Foundation.png) ](https://www.epilepsy.com)

[![Expecting Health](https://www.rarediseasediversity.org/hs-fs/hubfs/Expecting-Health.png?width=150&height=80&name=Expecting-Health.png) ](https://www.expectinghealth.org)

[![EveryLife Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/EveryLife-Foundation.png?width=150&height=80&name=EveryLife-Foundation.png) ](https://everylifefoundation.org)

[![E.WE Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/E-WE-Foundation.png?width=150&height=80&name=E-WE-Foundation.png) ](https://theewefoundation.org)

[![FSHD Society](https://www.rarediseasediversity.org/hs-fs/hubfs/FSHD-Society.png?width=150&height=80&name=FSHD-Society.png) ](https://www.fshdsociety.org)

[![Prader-Willi-Research](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Prader-Willi-Research.png?width=150&height=80&name=Prader-Willi-Research.png) ](https://www.fpwr.org/)

[![Foundation for Sarcoidosis Research](https://www.rarediseasediversity.org/hs-fs/hubfs/Foundation-for-Sarcoidosis-Research.png?width=150&height=80&name=Foundation-for-Sarcoidosis-Research.png) ](https://www.stopsarcoidosis.org)

[![GeneDx](https://www.rarediseasediversity.org/hubfs/RDDC/GeneDx.svg) ](https://www.genedx.com)

[![GFPD (Global Foundation for Peroxisomal Disorders)](https://www.rarediseasediversity.org/hs-fs/hubfs/GFPD-Global-Foundation-for-Peroxisomal-Disorders.png?width=150&height=80&name=GFPD-Global-Foundation-for-Peroxisomal-Disorders.png) ](https://thegfpd.org)

[![Gillette Childrens](https://www.rarediseasediversity.org/hs-fs/hubfs/Gillette-Childrens.png?width=150&height=80&name=Gillette-Childrens.png) ](https://www.gillettechildrens.org)

[![Glaukos Corporation logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Glaukos-Corporation.png?width=150&height=80&name=Glaukos-Corporation.png) ](https://www.glaukos.com)

[![Global Genes](https://www.rarediseasediversity.org/hs-fs/hubfs/Global-Genes.png?width=150&height=80&name=Global-Genes.png) ](https://globalgenes.org)

[![Global Liver Institute](https://www.rarediseasediversity.org/hs-fs/hubfs/Global-Liver-Institute.png?width=150&height=80&name=Global-Liver-Institute.png) ](https://globalliver.org)

[![Glo Preemies](https://www.rarediseasediversity.org/hs-fs/hubfs/Glo-Preemies.png?width=150&height=80&name=Glo-Preemies.png) ](https://www.glopreemies.org)

[![Guthy-Jackson](https://www.rarediseasediversity.org/hs-fs/hubfs/Guthy-Jackson.png?width=150&height=80&name=Guthy-Jackson.png) ](https://guthyjacksonfoundation.org/)

[![Click to view Harrmony Biosciences web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Harrmony-Biosciences.png?width=150&height=80&name=Harrmony-Biosciences.png) ](https://www.harmonybiosciences.com)

[![Histiocytosis Association](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Histiocytosis-Association.png?width=150&height=80&name=Histiocytosis-Association.png) ](https://histio.org)

[![Holland & Knight](https://www.rarediseasediversity.org/hs-fs/hubfs/hklaw.png?width=150&height=80&name=hklaw.png) ](https://www.hklaw.com/en)

[![Immune Deficiency Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Immune-Deficiency-Foundation.png?width=150&height=80&name=Immune-Deficiency-Foundation.png) ](https://primaryimmune.org)

[![indousrare](https://www.rarediseasediversity.org/hs-fs/hubfs/indousrare.png?width=150&height=80&name=indousrare.png) ](https://www.indousrare.org)

[![Click to view ionis web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/ionis.png?width=150&height=80&name=ionis.png) ](https://ionis.com)

[![The LAM Foudation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/LAM-Foudation.webp?width=150&height=80&name=LAM-Foudation.webp) ](https://www.thelamfoundation.org)

[![LGS Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/LGS-Foundation.png?width=150&height=80&name=LGS-Foundation.png) ](https://www.lgsfoundation.org)

[![MANA A National Latina Organization](https://www.rarediseasediversity.org/hs-fs/hubfs/MANA-A-National-Latina-Organization.png?width=150&height=80&name=MANA-A-National-Latina-Organization.png) ](https://www.hermana.org)

[![​Melanin Children Matter Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/%E2%80%8BMelanin-Children-Matter.png?width=150&height=80&name=%E2%80%8BMelanin-Children-Matter.png) ](https://www.melaninchildrenmatter.org)

[![Mission-Cure](https://www.rarediseasediversity.org/hs-fs/hubfs/Mission-Cure.png?width=150&height=80&name=Mission-Cure.png) ](https://mission-cure.org)

[![Muscular Dystrophy Association](https://www.rarediseasediversity.org/hs-fs/hubfs/Muscular-Dystrophy-Association.png?width=150&height=80&name=Muscular-Dystrophy-Association.png) ](https://www.mda.org)

[![Myasthenia Gravis Foundation of America, Inc](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Myasthenia-Gravis-Foundation.png?width=150&height=80&name=Myasthenia-Gravis-Foundation.png) ](https://myasthenia.org)

[![nac (National Alliance for Caregiving)](https://www.rarediseasediversity.org/hs-fs/hubfs/nac-National-Alliance-for-Caregiving.png?width=150&height=80&name=nac-National-Alliance-for-Caregiving.png) ](https://www.caregiving.org)

[![NBNA (National Black Nurses Association Inc.)](https://www.rarediseasediversity.org/hs-fs/hubfs/NBNA.png?width=150&height=80&name=NBNA.png) ](https://www.nbna.org)

[![National Genetics Education and Family Support ](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Genetics-Education-2.png?width=150&height=80&name=National-Genetics-Education-2.png) ](https://nationalfamilycenter.org)

[![NHMA (National Hispanic Medical Association)](https://www.rarediseasediversity.org/hs-fs/hubfs/NHMA.png?width=150&height=80&name=NHMA.png) ](https://www.nhmamd.org)

[![National-Bleeding-Disorders](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Bleeding-Disorders.png?width=150&height=80&name=National-Bleeding-Disorders.png) ](https://www.hemophilia.org/who-we-are)

[![National Institute of Health](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Institure-of-Health.png?width=150&height=80&name=National-Institure-of-Health.png) ](https://www.nih.gov)

[![NMA (National Medical Association)](https://www.rarediseasediversity.org/hs-fs/hubfs/NMA.png?width=150&height=80&name=NMA.png) ](https://www.nmanet.org)

[![Nephcure Kidney International](https://www.rarediseasediversity.org/hs-fs/hubfs/Nephcure-Kidney-International.png?width=150&height=80&name=Nephcure-Kidney-International.png) ](https://nephcure.org)

[![NORD (National Organization for Rare Disorders)](https://www.rarediseasediversity.org/hs-fs/hubfs/NORD.png?width=150&height=80&name=NORD.png) ](https://rarediseases.org)

[![Novartis Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Novartis.png?width=150&height=80&name=Novartis.png) ](https://www.novartis.com)

[![PAN (Patient Access Network) Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/PAN.png?width=150&height=80&name=PAN.png) ](https://www.panfoundation.org)

[![PAF (Patient Advocate Foundation)](https://www.rarediseasediversity.org/hs-fs/hubfs/PAF-Patient-Advocate-Foundation.png?width=150&height=80&name=PAF-Patient-Advocate-Foundation.png) ](https://www.patientadvocate.org)

[![Patients Rising logo](https://www.rarediseasediversity.org/hs-fs/hubfs/Patients-Rising.png?width=150&height=80&name=Patients-Rising.png) ](https://www.patientsrising.org)

[![pcori (Patient centered outcomes research institute)](https://www.rarediseasediversity.org/hs-fs/hubfs/pcori.png?width=150&height=80&name=pcori.png) ](https://www.pcori.org)

[![Prevent Blindness](https://www.rarediseasediversity.org/hs-fs/hubfs/Prevent-Blindness.png?width=150&height=80&name=Prevent-Blindness.png) ](https://preventblindness.org)

[![Rare Rising Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/RareRising-2-logo-1.webp?width=150&height=80&name=RareRising-2-logo-1.webp) ](https://rarerising.org)

[![SAPHA](https://www.rarediseasediversity.org/hs-fs/hubfs/SAPHA.png?width=150&height=80&name=SAPHA.png) ](https://www.sapha.org)

[![Scleroderma Research Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Scleroderma-Research-Foundation.png?width=150&height=80&name=Scleroderma-Research-Foundation.png) ](https://srfcure.org)

[![Scleroderma United](https://www.rarediseasediversity.org/hs-fs/hubfs/Scleroderma-United.png?width=150&height=80&name=Scleroderma-United.png) ](https://www.sclerounited.us)

[![SCARED (Sickle Cell Reproductive Health Education Directive)](https://www.rarediseasediversity.org/hs-fs/hubfs/SCRED.png?width=150&height=80&name=SCRED.png) ](https://sicklecellred.org)

[![Sickle inspired](https://www.rarediseasediversity.org/hs-fs/hubfs/Sickle-inspired.png?width=150&height=80&name=Sickle-inspired.png) ](https://www.instagram.com/sickle.inspired/?hl=en)

[![Sobi](https://www.rarediseasediversity.org/hs-fs/hubfs/Sobi.png?width=150&height=80&name=Sobi.png) ](https://www.sobi.com/en)

[![Sociedad Hispana de Enfermedades Raras](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Sociedad-Hispana-de-Enfermedades-Raras.png?width=150&height=80&name=Sociedad-Hispana-de-Enfermedades-Raras.png) ](https://www.hispanicsocietyrarediseases.org)

[![Sumaira-Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Sumaira-Foundation.png?width=150&height=80&name=Sumaira-Foundation.png) ](https://www.sumairafoundation.org)

[![SynGap Research Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/SynGap-Research-Fund.png?width=150&height=80&name=SynGap-Research-Fund.png) ](https://www.syngapresearchfund.org)

[![the waiting room entertainment](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/the-waiting-room-entertainment.png?width=150&height=80&name=the-waiting-room-entertainment.png) ](https://www.linkedin.com/in/thewaitingroomentertainment)

[![Think Genetic Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Think-Genetic-Foundation.png?width=150&height=80&name=Think-Genetic-Foundation.png) ](https://thinkgenetic.org)

[![Travere Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Travere-Therapeutics.png?width=150&height=80&name=Travere-Therapeutics.png) ](https://travere.com)

[![TSC Alliance](https://www.rarediseasediversity.org/hs-fs/hubfs/TSC-Alliance.png?width=150&height=80&name=TSC-Alliance.png) ](https://www.tscalliance.org)

[![A Twist of Fate](https://www.rarediseasediversity.org/hs-fs/hubfs/A-Twist-of-Fate.png?width=150&height=80&name=A-Twist-of-Fate.png) ](http://www.atwistoffate-ats.org)

[![UCB](https://www.rarediseasediversity.org/hs-fs/hubfs/UCB.png?width=150&height=80&name=UCB.png) ](https://www.ucb.com)

[![UDNF (Undiagnosed Diseases Network Foundation)](https://www.rarediseasediversity.org/hs-fs/hubfs/UDNF.png?width=150&height=80&name=UDNF.png) ](https://commonfund.nih.gov/diseases)

[![The Vasculitis Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Vasculitis-Foundation.png?width=150&height=80&name=Vasculitis-Foundation.png) ](https://vasculitisfoundation.org)

[![VHL Alliance](https://www.rarediseasediversity.org/hs-fs/hubfs/VHL-Alliance.png?width=150&height=80&name=VHL-Alliance.png) ](https://www.vhl.org)

[![Vertex](https://www.rarediseasediversity.org/hs-fs/hubfs/Vertex.png?width=150&height=80&name=Vertex.png) ](https://www.vrtx.com)

[![Watts Group LLC](https://www.rarediseasediversity.org/hs-fs/hubfs/Watts-Group-LLC.png?width=150&height=80&name=Watts-Group-LLC.png) ](https://www.wattsgroupllc.com)

[![ZS logo: Click to visit their web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/ZS.png?width=150&height=80&name=ZS.png) ](https://www.zs.com)

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