Rare Disease Day 2024 Header

Rare Disease Day 2024
RISE Award Reception

February 28, 2024

6:00 - 8:00 PM EST

00

days

00

hours

00

minutes

00

seconds

OUR EVENT

Please join the RDDC for its second annual eve of Rare Disease Day Reception. This year's event will feature the inaugural RDDC RISE Awards that recognize a handful of rare disease health equity champions who have been Resilient, Impassioned, Strong and Empowered towards the mission and vision of the RDDC.

Registration is now closed - you can sign up for our waitlist and we will notify you if space opens up for the event this week.

EASE on Down The Road with us virtually April 28, 29, 30th en route to The Capital City July 28-30, 2022 for the Interactive High-Touch Coaching™ Experience!

  Explore the 10 "Pulses" of the BWHI coaching model
  Apply them to successfully reach program goals
  Sharpen existing coaching skills
  Evolve through engagement in activities, events and more
HIGH TOUCH ROAD Virtual Journal

Rare Disease Day Reception

In-Person*

February 28, 2024

6:00 - 8:00 PM EST
Location

Long View Gallery
1234 9th St, NW
Washington, DC 20001

Dress Code

Business Casual

Jenifer Waldrop Featured Speaker at RDDC 2023 Conference

FEATURED SPEAKERS

Jenifer Waldrop

Jenifer Waldrop, MS

Rare Disease Diversity Coalition

Linda Goler Blount: RDDC Featured Speaker

Linda Goler Blount

MPH President

Black Women's Health Imperative

RISE AWARD RECIPIENTS

Genesis Jones

Patient RISE Award

Genesis Jones
Dr. Marshall Summar: RDDC Provider RISE Award

Provider RISE Award

Dr. Marshall Summar
Sarita Edwards: RDDC Caregiver RISE Award

Caregiver RISE Award

Sarita Edwards
FDA Logo

Health Equity RISE Award

OOPD

at FDA

Charlotte Smith: RDDC Industry Partner

Industry Partner

Travere Therapeutics

Charlotte Smith

Shonta Chambers: RDDC Patient Advocacy

Patient Advocacy

Patient Advocate Foundation

Shonta Chambers

Veronica Moore: RDDC Honoree Industry Partner

Honoree Industry Partner

Amgen - Rare Disease Business Unit (RDBU)

Veronica Moore

RDDC-TBA

Congressional RISE Award

TBA
RDDC-TBA

Congressional RISE Award

TBA

2023 RARE DISEASE DAY RECEPTION

COVID Precautions:

Health is more than a trending topic. It's the root of our work- it's personal. To ensure that we do our part to keep everyone safe.

  • Testing: It is recommended that all attendees take a COVID-19 test 24 hours or less before your arrival. If you test positive, please stay home.
  • Vaccinations: While we will not ask for proof of vaccination, RDDC strongly encourages all participants to be fully vaccinated against COVID-19, including eligible booster shots. 
  • Masking: Masks are not required, but you may want to consider wearing one in crowded spaces or if you are currently immunocompromised.
  • Social distancing: We will do our best to allow for space in all event areas so that you may social distance as you wish. 

Cancellation and Refund Policy

The event is Free. We understand that this year brings many unknowns, and so we just request that should you be unable to attend, that you email Taylor Dominguez at tdominguez@bwhi.org.

Get Conference Updates in Your Inbox