Rare Disease Day 2024 Header

RISE Awards

Eve of Rare Disease Day 2025

February 27, 2025

6:00 - 8:00 PM EST

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OUR EVENT

Please join the RDDC for its third annual Eve of Rare Disease Day Reception. This year's event will feature the second annual RDDC RISE Awards that recognize a handful of rare disease health equity champions who have been Resilient, Impassioned, Strong and Empowered towards the mission and vision of the RDDC.

EASE on Down The Road with us virtually April 28, 29, 30th en route to The Capital City July 28-30, 2022 for the Interactive High-Touch Coaching™ Experience!

  Explore the 10 "Pulses" of the BWHI coaching model
  Apply them to successfully reach program goals
  Sharpen existing coaching skills
  Evolve through engagement in activities, events and more
HIGH TOUCH ROAD Virtual Journal

Rare Disease Day Reception

In-Person*

February 27, 2025

6:00 - 8:00 PM EST

Location

Le Meridien Madison Hotel
1177 15th St NW
Washington, DC 20005


Dress Code

Business Casual

Jenifer Waldrop Featured Speaker at RDDC 2023 Conference

HOST

Adrianna Hopkins

Adrianna Hopkins

News Anchor, Journalist

FEATURED SPEAKERS

Jenifer Waldrop

Jenifer Waldrop, MS

Rare Disease Diversity Coalition

Linda Goler Blount: RDDC Featured Speaker

Linda Goler Blount

MPH President

Black Women's Health Imperative

RISE AWARD RECIPIENTS

Liz Kennerley

Patient RISE Award

Liz Kennerley
Dr. LaTonya Washington

Provider RISE Award

Dr. LaTonya Washington
Dr. Harsha Rajasimha

Caregiver RISE Award

Dr. Harsha Rajasimha
NIH Logo

Health Equity RISE Award

NIH - National Center for Advancing Translational Science
Rare Diseases Clinical Research Network

Honoree Health Equity RISE Award

Rare Diseases Clinical Research Network
Stephanie Marshall:  RDDC 2025 Patient Advocacy RISE Award

Patient Advocacy RISE Award

Stephanie Marshall
Novartis: 2025 Industry Partner RISE Award

Industry Partner RISE Award

Novartis
RDDC-TBA

Congressional RISE Award

TBA
RDDC-TBA

Congressional RISE Award

TBA

2024 RARE DISEASE DAY RECEPTION

Health and Accessibility Information:

At RDDC, health is at the heart of our work, and we want to ensure a safe and inclusive experience for all attendees.

  • Masking: While masks are not required, we encourage masking if you have any health conditions or prefer added protection, as we cannot guarantee six feet of distance in event spaces.
  • Accessibility: If you require special assistance, such as wheelchair accessibility or other accommodations, please let us know in advance so we can best support you.

Thank you for helping us create a welcoming and mindful environment for everyone!

Cancellation and Refund Policy

The event is Free. We understand that unknowns happen, and so we just request that should you be unable to attend, that you email Taylor Dominguez at tdominguez@bwhi.org.

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