2026 Capitol Hill Briefing and Eve Dryer RISE Awards Reception

Our Event

Capitol Hill Briefing

The 2026 Capitol Hill briefing will highlight key findings from our Medically Underserved Populations in Rare Disease Research in the United States report, with select authors sharing insights and policy implications to address gaps in representation, access, and outcomes.

Eve Dryer RISE Awards Reception

The Eve Dryer RISE Awards Reception portion of the event will celebrate the "rare within rare"—honoring individuals and organizations who embody the RDDC's mission and vision by breaking barriers, building trust, and advancing health equity across the rare disease community. This event recognizes a select group of rare disease champions whose resilience, passion, strength, and empowerment have driven meaningful progress toward a more equitable future for all those affected by rare diseases.