RDDCTM convenes rare disease experts, patient organizations, health and diversity advocates, and industry leaders with a deep knowledge of the medical, industry, regulatory, and cultural challenges facing people of color with rare diseases.
The Rare Disease Diversity Coalition and Links2Equity are proud to present this paper, Health Equity for People Living with PNH: Creating a Leveled Playing Field. This paper was made possible through the insights and contributions of patient advocates, healthcare professionals, advocates, and others who have lived experience with Paroxysmal Nocturnal Hemoglobinuria (PNH). Please share with your PNH communities.
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