--- title: "RDDC: Team Page" description: The Rare Disease Diversity Coalition is made up of rare disease experts, patients, healthcare professionals, diversity advocates, and industry leaders. Meet our dedicated Team. image: https://www.rarediseasediversity.org/hubfs/Team-feature.jpg --- [Skip to main content](https://www.rarediseasediversity.org/rddc-team#main) [![RDDC logo TM](https://www.rarediseasediversity.org/hubfs/RDDC-logo-TM.svg) ![RDDC logo TM Sticky](https://www.rarediseasediversity.org/hubfs/RDDC-logo-TM.svg) ![RDDC logo TM mobile](https://www.rarediseasediversity.org/hubfs/RDDC-logo-TM.svg) ![RDDC logo TM mobile sticky](https://www.rarediseasediversity.org/hubfs/RDDC-logo-TM.svg) ](https://www.rarediseasediversity.org?hsLang=en) - [Show submenu for About the Coalition About the Coalition ](https://www.rarediseasediversity.org/about) - [Our Team](https://www.rarediseasediversity.org/rddc-team) - [Advisory Council](https://www.rarediseasediversity.org/rddc-advisory-council) - [Industry Alliance](https://www.rarediseasediversity.org/industry-alliance) - [Partners](https://www.rarediseasediversity.org/rddc-partners) - [Show submenu for What We Do What We Do 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Testing](https://www.rarediseasediversity.org/breaking-barriers) - [Patient Stories](https://www.rarediseasediversity.org/rddc-patient-stories) - Show submenu for The Latest The Latest - The Latest - [The Latest](https://www.rarediseasediversity.org/the-latest) - [Opportunities](https://www.rarediseasediversity.org/rddc-opportunities) - [News & Announcements](https://www.rarediseasediversity.org/blog) - [Resources & Research](https://www.rarediseasediversity.org/research-resources) - [Events](https://www.rarediseasediversity.org/rddc-events) - Search - [Donate](https://www.rarediseasediversity.org/?campaign=677445) [Donate](https://www.rarediseasediversity.org/?campaign=677445&hsLang=en) Search # Our Team The RDDC™ team works with our partners and advisory council to to identify and advocate for evidence-based solutions to alleviate the disproportionate burden of rare diseases on historically marginalized populations. ![RDDC Team](https://www.rarediseasediversity.org/hs-fs/hubfs/Team.png?width=519&height=431&name=Team.png) ![Jenifre Ngo Waldrop](https://www.rarediseasediversity.org/hs-fs/hubfs/Jenifre_Ngo_Waldrop.jpeg?width=333&height=445&name=Jenifre_Ngo_Waldrop.jpeg) ##### BWHI - RDDC #### Jenifer Waldrop Executive Director [** ](https://www.linkedin.com/in/jenwaldrop04/) ![Taylor Dominguez](https://www.rarediseasediversity.org/hs-fs/hubfs/Taylor-Dominguez.jpg?width=333&height=445&name=Taylor-Dominguez.jpg) ##### BWHI - RDDC #### Taylor Dominguez Project Manager [** ](https://www.linkedin.com/in/taylor-dominguez-mba-241727126/) ![Jocelyn Cooper](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Jocelyn-Cooper.jpg?width=333&height=445&name=Jocelyn-Cooper.jpg) ##### BWHI - RDDC #### Jocelyn Cooper Program Manager [** ](https://www.linkedin.com/in/jocelynadvocates/) ![Deanna Darlington](https://www.rarediseasediversity.org/hs-fs/hubfs/Deanna-Darlington.jpg?width=333&height=445&name=Deanna-Darlington.jpg) ##### Links2Equity #### Deanna Darlington Consultant, Business Development [** ](https://www.linkedin.com/in/deanna-darlington-46988b8/) ## Our Partners [![The Aarskog Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Aarskog-Foundation.png?width=150&height=80&name=The-Aarskog-Foundation.png) ](https://www.aarskogsyndromefoundation.co.uk) [![association-of-black-cardiologists](https://www.rarediseasediversity.org/hs-fs/hubfs/association-of-black-cardiologists.png?width=150&height=80&name=association-of-black-cardiologists.png) ](https://abcardio.org) [![abcuro logo: Click to visit their web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/abcuro.png?width=150&height=80&name=abcuro.png) ](https://abcuro.com) [![accessia health logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/accessia-health.png?width=150&height=80&name=accessia-health.png) ](https://accessiahealth.org) [![The Akari Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Akari-Foundation.png?width=150&height=80&name=The-Akari-Foundation.png) ](https://theakarifoundation.org) [![ALS Association](https://www.rarediseasediversity.org/hs-fs/hubfs/ALS-Association.png?width=150&height=80&name=ALS-Association.png) ](https://www.als.org) [![Alliance for Black NICU Families](https://www.rarediseasediversity.org/hs-fs/hubfs/Alliance-for-Black-NICU-Families.png?width=150&height=80&name=Alliance-for-Black-NICU-Families.png) ](https://blacknicufamilies.org) [![amgen](https://www.rarediseasediversity.org/hs-fs/hubfs/amgen.png?width=150&height=80&name=amgen.png) ](https://www.amgen.com) [![American Kidney Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/americankidney.png?width=150&height=80&name=americankidney.png) ](https://www.kidneyfund.org) [![American Muslim Health Professionals (AMHP)](https://www.rarediseasediversity.org/hs-fs/hubfs/American-Muslim-Health-Professionals-AMHP.png?width=150&height=80&name=American-Muslim-Health-Professionals-AMHP.png) ](https://amhp.us) [![Amicus](https://www.rarediseasediversity.org/hs-fs/hubfs/Amicus.png?width=150&height=80&name=Amicus.png) ](https://amicusrx.com) [![ArgenX](https://www.rarediseasediversity.org/hs-fs/hubfs/ArgenX.png?width=150&height=80&name=ArgenX.png) ](https://www.argenx.com) [![Association of American Indian Physicians](https://www.rarediseasediversity.org/hs-fs/hubfs/Association-of-American-Indian-Physicians.png?width=150&height=80&name=Association-of-American-Indian-Physicians.png) ](https://www.aaip.org) [![The Assistance Fund](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Assistance-Fund.png?width=150&height=80&name=The-Assistance-Fund.png) ](https://tafcares.org) [![Sickle Cell Disease Association of America](https://www.rarediseasediversity.org/hs-fs/hubfs/Sickle-Cell%20Disease-Association-of-America.png?width=150&height=80&name=Sickle-Cell%20Disease-Association-of-America.png) ](https://www.sicklecelldisease.org) [![Astria Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Astria-Therapeutics.png?width=150&height=80&name=Astria-Therapeutics.png) ](https://astriatx.com) [![The Balm in Gilead Inc. ](https://www.rarediseasediversity.org/hs-fs/hubfs/The-Balm-in-Gilead-Inc.png?width=150&height=80&name=The-Balm-in-Gilead-Inc.png) ](https://www.balmingilead.org) [![bridgebio](https://www.rarediseasediversity.org/hs-fs/hubfs/bridgebio.png?width=150&height=80&name=bridgebio.png) ](https://bridgebio.com) [![Boehringer Ingelheim](https://www.rarediseasediversity.org/hs-fs/hubfs/Boehringer-Ingelheim.png?width=150&height=80&name=Boehringer-Ingelheim.png) ](https://www.boehringer-ingelheim.com) [![CACNA1A Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/CACNA1A-Foundation.png?width=150&height=80&name=CACNA1A-Foundation.png) ](https://www.cacna1a.org) [![Caring Families](https://www.rarediseasediversity.org/hs-fs/hubfs/Caring-Families.png?width=150&height=80&name=Caring-Families.png) ](https://www.carefamilies.com) [![Childrens National Hospital](https://www.rarediseasediversity.org/hs-fs/hubfs/Childrens-National-Hospital-2.png?width=150&height=80&name=Childrens-National-Hospital-2.png) ](https://childrensnational.org) [![American College of CHEST Physicians](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Chest-American-College.png?width=150&height=80&name=Chest-American-College.png) ](https://www.chestnet.org) [![CombinedBrain](https://www.rarediseasediversity.org/hs-fs/hubfs/CombinedBrain.png?width=150&height=80&name=CombinedBrain.png) ](https://combinedbrain.org) [![Cincinnati Children's](https://www.rarediseasediversity.org/hs-fs/hubfs/Cincinnati-Childrens.png?width=150&height=80&name=Cincinnati-Childrens.png) ](https://www.cincinnatichildrens.org) [![Couch Pennies Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Couch-Pennies-Foundation.png?width=150&height=80&name=Couch-Pennies-Foundation.png) ](https://www.facebook.com/couchpenniesfoundation) [![National CMV Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/National-CMV-Foundation.png?width=150&height=80&name=National-CMV-Foundation.png) ](https://www.nationalcmv.org) [![Elevate-Advocacy](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Elevate-Advocacy.png?width=150&height=80&name=Elevate-Advocacy.png) ](https://www.elevateadvocacy.com) [![Entrada Therapeutics](https://www.rarediseasediversity.org/hs-fs/hubfs/Entrada-Therapeutics.png?width=150&height=80&name=Entrada-Therapeutics.png) ](https://www.entradatx.com) [![Epilepsy Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Epilepsy-Foundation.png?width=150&height=80&name=Epilepsy-Foundation.png) ](https://www.epilepsy.com) [![Expecting Health](https://www.rarediseasediversity.org/hs-fs/hubfs/Expecting-Health.png?width=150&height=80&name=Expecting-Health.png) ](https://www.expectinghealth.org) [![EveryLife Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/EveryLife-Foundation.png?width=150&height=80&name=EveryLife-Foundation.png) ](https://everylifefoundation.org) [![E.WE Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/E-WE-Foundation.png?width=150&height=80&name=E-WE-Foundation.png) ](https://theewefoundation.org) [![FSHD Society](https://www.rarediseasediversity.org/hs-fs/hubfs/FSHD-Society.png?width=150&height=80&name=FSHD-Society.png) ](https://www.fshdsociety.org) [![Prader-Willi-Research](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Prader-Willi-Research.png?width=150&height=80&name=Prader-Willi-Research.png) ](https://www.fpwr.org/) [![Foundation for Sarcoidosis Research](https://www.rarediseasediversity.org/hs-fs/hubfs/Foundation-for-Sarcoidosis-Research.png?width=150&height=80&name=Foundation-for-Sarcoidosis-Research.png) ](https://www.stopsarcoidosis.org) [![GeneDx](https://www.rarediseasediversity.org/hubfs/RDDC/GeneDx.svg) ](https://www.genedx.com) [![GFPD (Global Foundation for Peroxisomal Disorders)](https://www.rarediseasediversity.org/hs-fs/hubfs/GFPD-Global-Foundation-for-Peroxisomal-Disorders.png?width=150&height=80&name=GFPD-Global-Foundation-for-Peroxisomal-Disorders.png) ](https://thegfpd.org) [![Gillette Childrens](https://www.rarediseasediversity.org/hs-fs/hubfs/Gillette-Childrens.png?width=150&height=80&name=Gillette-Childrens.png) ](https://www.gillettechildrens.org) [![Glaukos Corporation logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Glaukos-Corporation.png?width=150&height=80&name=Glaukos-Corporation.png) ](https://www.glaukos.com) [![Global Genes](https://www.rarediseasediversity.org/hs-fs/hubfs/Global-Genes.png?width=150&height=80&name=Global-Genes.png) ](https://globalgenes.org) [![Global Liver Institute](https://www.rarediseasediversity.org/hs-fs/hubfs/Global-Liver-Institute.png?width=150&height=80&name=Global-Liver-Institute.png) ](https://globalliver.org) [![Glo Preemies](https://www.rarediseasediversity.org/hs-fs/hubfs/Glo-Preemies.png?width=150&height=80&name=Glo-Preemies.png) ](https://www.glopreemies.org) [![Guthy-Jackson](https://www.rarediseasediversity.org/hs-fs/hubfs/Guthy-Jackson.png?width=150&height=80&name=Guthy-Jackson.png) ](https://guthyjacksonfoundation.org/) [![Click to view Harrmony Biosciences web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Harrmony-Biosciences.png?width=150&height=80&name=Harrmony-Biosciences.png) ](https://www.harmonybiosciences.com) [![Histiocytosis Association](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Histiocytosis-Association.png?width=150&height=80&name=Histiocytosis-Association.png) ](https://histio.org) [![Holland & Knight](https://www.rarediseasediversity.org/hs-fs/hubfs/hklaw.png?width=150&height=80&name=hklaw.png) ](https://www.hklaw.com/en) [![Immune Deficiency Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Immune-Deficiency-Foundation.png?width=150&height=80&name=Immune-Deficiency-Foundation.png) ](https://primaryimmune.org) [![indousrare](https://www.rarediseasediversity.org/hs-fs/hubfs/indousrare.png?width=150&height=80&name=indousrare.png) ](https://www.indousrare.org) [![Click to view ionis web site](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/ionis.png?width=150&height=80&name=ionis.png) ](https://ionis.com) [![The LAM Foudation](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/LAM-Foudation.webp?width=150&height=80&name=LAM-Foudation.webp) ](https://www.thelamfoundation.org) [![LGS Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/LGS-Foundation.png?width=150&height=80&name=LGS-Foundation.png) ](https://www.lgsfoundation.org) [![MANA A National Latina Organization](https://www.rarediseasediversity.org/hs-fs/hubfs/MANA-A-National-Latina-Organization.png?width=150&height=80&name=MANA-A-National-Latina-Organization.png) ](https://www.hermana.org) [![​Melanin Children Matter Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/%E2%80%8BMelanin-Children-Matter.png?width=150&height=80&name=%E2%80%8BMelanin-Children-Matter.png) ](https://www.melaninchildrenmatter.org) [![Mission-Cure](https://www.rarediseasediversity.org/hs-fs/hubfs/Mission-Cure.png?width=150&height=80&name=Mission-Cure.png) ](https://mission-cure.org) [![Muscular Dystrophy Association](https://www.rarediseasediversity.org/hs-fs/hubfs/Muscular-Dystrophy-Association.png?width=150&height=80&name=Muscular-Dystrophy-Association.png) ](https://www.mda.org) [![Myasthenia Gravis Foundation of America, Inc](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Myasthenia-Gravis-Foundation.png?width=150&height=80&name=Myasthenia-Gravis-Foundation.png) ](https://myasthenia.org) [![nac (National Alliance for Caregiving)](https://www.rarediseasediversity.org/hs-fs/hubfs/nac-National-Alliance-for-Caregiving.png?width=150&height=80&name=nac-National-Alliance-for-Caregiving.png) ](https://www.caregiving.org) [![NBNA (National Black Nurses Association Inc.)](https://www.rarediseasediversity.org/hs-fs/hubfs/NBNA.png?width=150&height=80&name=NBNA.png) ](https://www.nbna.org) [![National Genetics Education and Family Support ](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Genetics-Education-2.png?width=150&height=80&name=National-Genetics-Education-2.png) ](https://nationalfamilycenter.org) [![NHMA (National Hispanic Medical Association)](https://www.rarediseasediversity.org/hs-fs/hubfs/NHMA.png?width=150&height=80&name=NHMA.png) ](https://www.nhmamd.org) [![National-Bleeding-Disorders](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Bleeding-Disorders.png?width=150&height=80&name=National-Bleeding-Disorders.png) ](https://www.hemophilia.org/who-we-are) [![National Institute of Health](https://www.rarediseasediversity.org/hs-fs/hubfs/National-Institure-of-Health.png?width=150&height=80&name=National-Institure-of-Health.png) ](https://www.nih.gov) [![NMA (National Medical Association)](https://www.rarediseasediversity.org/hs-fs/hubfs/NMA.png?width=150&height=80&name=NMA.png) ](https://www.nmanet.org) [![Nephcure Kidney International](https://www.rarediseasediversity.org/hs-fs/hubfs/Nephcure-Kidney-International.png?width=150&height=80&name=Nephcure-Kidney-International.png) ](https://nephcure.org) [![NORD (National Organization for Rare Disorders)](https://www.rarediseasediversity.org/hs-fs/hubfs/NORD.png?width=150&height=80&name=NORD.png) ](https://rarediseases.org) [![Novartis Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Novartis.png?width=150&height=80&name=Novartis.png) ](https://www.novartis.com) [![PAN (Patient Access Network) Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/PAN.png?width=150&height=80&name=PAN.png) ](https://www.panfoundation.org) [![PAF (Patient Advocate Foundation)](https://www.rarediseasediversity.org/hs-fs/hubfs/PAF-Patient-Advocate-Foundation.png?width=150&height=80&name=PAF-Patient-Advocate-Foundation.png) ](https://www.patientadvocate.org) [![Patients Rising logo](https://www.rarediseasediversity.org/hs-fs/hubfs/Patients-Rising.png?width=150&height=80&name=Patients-Rising.png) ](https://www.patientsrising.org) [![pcori (Patient centered outcomes research institute)](https://www.rarediseasediversity.org/hs-fs/hubfs/pcori.png?width=150&height=80&name=pcori.png) ](https://www.pcori.org) [![Prevent Blindness](https://www.rarediseasediversity.org/hs-fs/hubfs/Prevent-Blindness.png?width=150&height=80&name=Prevent-Blindness.png) ](https://preventblindness.org) [![Rare Rising Logo](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/RareRising-2-logo-1.webp?width=150&height=80&name=RareRising-2-logo-1.webp) ](https://rarerising.org) [![SAPHA](https://www.rarediseasediversity.org/hs-fs/hubfs/SAPHA.png?width=150&height=80&name=SAPHA.png) ](https://www.sapha.org) [![Scleroderma Research Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Scleroderma-Research-Foundation.png?width=150&height=80&name=Scleroderma-Research-Foundation.png) ](https://srfcure.org) [![Scleroderma United](https://www.rarediseasediversity.org/hs-fs/hubfs/Scleroderma-United.png?width=150&height=80&name=Scleroderma-United.png) ](https://www.sclerounited.us) [![SCARED (Sickle Cell Reproductive Health Education Directive)](https://www.rarediseasediversity.org/hs-fs/hubfs/SCRED.png?width=150&height=80&name=SCRED.png) ](https://sicklecellred.org) [![Sickle inspired](https://www.rarediseasediversity.org/hs-fs/hubfs/Sickle-inspired.png?width=150&height=80&name=Sickle-inspired.png) ](https://www.instagram.com/sickle.inspired/?hl=en) [![Sobi](https://www.rarediseasediversity.org/hs-fs/hubfs/Sobi.png?width=150&height=80&name=Sobi.png) ](https://www.sobi.com/en) [![Sociedad Hispana de Enfermedades Raras](https://www.rarediseasediversity.org/hs-fs/hubfs/RDDC/Sociedad-Hispana-de-Enfermedades-Raras.png?width=150&height=80&name=Sociedad-Hispana-de-Enfermedades-Raras.png) ](https://www.hispanicsocietyrarediseases.org) [![Sumaira-Foundation](https://www.rarediseasediversity.org/hs-fs/hubfs/Sumaira-Foundation.png?width=150&height=80&name=Sumaira-Foundation.png) ](https://www.sumairafoundation.org) [![SynGap Research 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