Advisory Council

The RDDC™ Advisory Council is made up of rare disease experts, patients, health care professionals, diversity advocates, and industry leaders who advocate, guide, and provide current knowledge to help further RDDC™’s mission.

RDDC Advisory Council
Linda Goler Blount
BWHI

Linda Goler Blount

President & CEO

Jenifer Ngo Waldrop
RDDC

Jenifer Waldrop

Executive Director

LaVarne Burton
American Kidney Fund

LaVarne Burton

President and Chief Executive Officer

Juliet K. Choi
Asian & Pacific Islander American Health Forum

Juliet K. Choi

JD Chief Executive Officer

Deanna Darlington
RDDC

Deanna Darlington

Consultant, Business Development

Debbie Drell
National Organization for Rare Disorders

Debbie Drell

Senior Director of Membership

Eve Dryer
Travere Therapeutics

Eve Dryer

Vice President, Patient Advocacy

Sika Dunyoh
Travere Therapeutics

Sika Dunyoh

Director of Patient Advocacy

Kimberly Haugstad
Upequity

Kimberly Haugstad

CEO & Co-founder

Patrice Heinz
National Alliance for Caregiving

Patrice Heinz

Chief Operating Officer

Courtney Keplinger, MBA
Vertex Pharmaceuticals

Courtney Keplinger, MBA

Senior Director, Public Affairs

Aletha Maybank, MD, MPH
American Medical Association

Aletha Maybank, MD, MPH

Chief Health Equity Officer, SVP

Veronica Moore
Horizon Therapeutics

Veronica Moore

Associate Director, R&D Patient Advocacy

Charlene Sonrigby
Global Genes

Charlene Sonrigby

CEO

Saira Sultran
Connect 4 Strategies

Saira Sultran

CEO

Marshall Summar, MD
Uncommon Cures

Marshall Summar, MD

Chief Executive Officer

Michelle Webb
BWHI

Michelle Webb

EVP, Chief Marketing & Communications Officer

Laura Weidner
Epilepsy Foundation

Laura Weidner

Vice President, Government Relations & Advocacy

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