As my time with the Rare Disease Diversity Coalition (RDDC) fellowship ends, I reflect on the profound experiences and lessons learned throughout this transformative journey. My initial blog post highlighted my dedication to addressing health disparities, especially those that impact marginalized communities—a commitment that has been the driving force behind my work as a public health practitioner. As I close this chapter, I am filled with a deep sense of accomplishment and a renewed commitment to the cause that first drew me to this fellowship.

My fellowship with RDDC has provided me with an unparalleled opportunity to delve into the complexities of rare diseases, particularly the challenges marginalized communities face in accessing diagnosis, treatment, and clinical trials. Working alongside the Undiagnosed Diseases Network (UDN), I witnessed firsthand the gaps in healthcare for those with rare and undiagnosed conditions. This experience has expanded my understanding of the systemic barriers that contribute to these disparities and solidified my resolve to advocate for more inclusive and equitable health policies.

One of the most impactful aspects of this fellowship was the chance to contribute to the ongoing conversation about inclusivity in rare disease research. Being part of a network that prioritizes diversity in its approach to rare diseases was empowering and enlightening. I had the opportunity to engage with experts at the forefront of this field, and together, we explored strategies to ensure that marginalized populations are not only included but are integral to the research and policy-making processes. This work is critical because, as we know, the lack of representation in clinical trials and research can lead to significant health disparities—something that I have personally experienced as someone living with Dupuytren’s Contracture.

Throughout the fellowship, I have been driven by a desire to see a healthcare system that truly serves all communities. My work with RDDC and UDN has reaffirmed my belief in the importance of advocacy and research that centers on the needs and experiences of marginalized populations. It has also reminded me of the power of collaboration in driving change. The fellowship brought together individuals from diverse backgrounds, each with a unique perspective on the challenges and opportunities within the rare disease community. Together, we have laid the groundwork for future initiatives that I am confident will lead to more equitable healthcare outcomes.

As I advance in my career, the experiences and knowledge gained during this fellowship will continue to guide my work. My time with RDDC has deepened my commitment to public health research, particularly in areas that address the disparities in our healthcare system. I am eager to build on the foundation laid during this fellowship, using my voice and skills to advocate for those who are often overlooked in the world of healthcare.

In closing, I would like to express my heartfelt gratitude to the Rare Disease Diversity Coalition, the Undiagnosed Diseases Network, and all the mentors, colleagues, and fellow advocates who have made this journey so impactful. Our work together is just the beginning, and I am excited to see how our collective efforts will continue to shape the future of rare disease research and advocacy.

This fellowship has been more than just a professional opportunity—it has been a deeply personal journey that has reinforced my belief in the importance of inclusivity, equity, and justice in healthcare. As I turn the page on this chapter, I do so with a sense of purpose and a commitment to continue our work, knowing that together, we can make a difference in the lives of those who need it most.