RDDC advocates for legislation and policies that alleviate the disproportionate burden of rare diseases on historically marginalized populations, increase health equity, and empower patient voices in all aspects of the healthcare process.
RDDC’s members and partner organizations are made up of rare disease experts, patients, health care professionals, diversity advocates, and industry leaders who advocate, guide, and provide current knowledge to help RDDC inform the Federal legislative and Administrative process. RDDC maintains extensive relationships with members of Congress and the Administrative branch, and furthers our important goals through a wide-range of actions, from directly speaking to policymakers, to introducing legislation and commenting on Administrative actions.
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