Rare Disease Diversity Coalition

New Leader Chosen to Direct Coalition Serving Diverse Rare Disease Patients; Will Give Remarks at Global Genes RARE Health Equity Summit November 9-11th

RDDC News & Announcements

News, Announcements & Reflections

Rare Disease Innovation and Partnership Summit 2023 Panel

RDDC Inaugural Rare Disease Day Reception

2023 Rare Disease Day Reception

Mental Health Awareness Month

Meet Dr. Aditi Kantipuly, RDDC Rare Disease Fellow

Meet Rewaa Elgazar, RDDC Rare Disease Fellow

RDDC announces Rare Disease Fellows

Boston Herald published the Rare Disease Day op-ed

Students seek solutions to clinical trial equity challenges at BioNJ competition

2022 RARE Health Equity Summit: Partners in Action - November 9-11, 2022(Recap + Gallery)

New Leader Chosen to Direct Coalition Serving Diverse Rare Disease Patients; Will Give Remarks at Global Genes RARE Health Equity Summit November 9-11th

RDDC and NORD Announce New Partnership to Help Identify Barriers for RareDisease Patients and their Caregivers

Global Genes and Rare Disease Diversity Coalition Launch Next Phase of Multifaceted Partnership Aimed at Accelerating and Advancing Health Equity

Insights: Improving Hispanic Health Outcomes, A Conversation With Dr. Elena Rios

Howard University President Dr. Wayne A. I. Frederick To Deliver Remarks On Advancing Health Equity In Communities Of Color To Rare Disease Organization

Black Women's Health Imperative Announces The Rare Disease Diversity Coalition's "RISE For Rare" Campaign

Fighting Injustice in Health Care for Black Women and Diverse Rare Disease Patients

Coalition Will Address Racial Disparities in Rare Disease Communities

Policy and Legislation

2022 End of Year
Priorities Letter

Congressional Letter
Orphan Drug Credit

Our Partners

Sign Up for the Latest Updates

News, Announcements & Reflections

Rare Disease Innovation and Partnership Summit 2023 Panel

RDDC Inaugural Rare Disease Day Reception

2023 Rare Disease Day Reception

Mental Health Awareness Month

Meet Dr. Aditi Kantipuly, RDDC Rare Disease Fellow

Meet Rewaa Elgazar, RDDC Rare Disease Fellow

RDDC announces Rare Disease Fellows

Boston Herald published the Rare Disease Day op-ed

Students seek solutions to clinical trial equity challenges at BioNJ competition

2022 RARE Health Equity Summit: Partners in Action - November 9-11, 2022(Recap + Gallery)

New Leader Chosen to Direct Coalition Serving Diverse Rare Disease Patients; Will Give Remarks at Global Genes RARE Health Equity Summit November 9-11th

RDDC and NORD Announce New Partnership to Help Identify Barriers for RareDisease Patients and their Caregivers

Global Genes and Rare Disease Diversity Coalition Launch Next Phase of Multifaceted Partnership Aimed at Accelerating and Advancing Health Equity

Insights: Improving Hispanic Health Outcomes, A Conversation With Dr. Elena Rios

Howard University President Dr. Wayne A. I. Frederick To Deliver Remarks On Advancing Health Equity In Communities Of Color To Rare Disease Organization

Black Women's Health Imperative Announces The Rare Disease Diversity Coalition's "RISE For Rare" Campaign

Fighting Injustice in Health Care for Black Women and Diverse Rare Disease Patients

Coalition Will Address Racial Disparities in Rare Disease Communities

Policy and Legislation

2022 End of YearPriorities Letter

Congressional Letter Orphan Drug Credit

Our Partners

Sign Up for the Latest Updates

2022 End of Year
Priorities Letter

Congressional Letter
Orphan Drug Credit