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News, Announcements & Reflections

Stay up to date on the latest updates from the Rare Disease Diversity Coalition

RDDC Blog
March 18, 2025 • 2 min read
The Unintended Consequences of Government Event Restrictions on the Rare Disease Community
March 14, 2025 • 3 min read
Don’t Forget the People: Re-Humanizing Rare Disease Research
January 22, 2025 • 4 min read
Bridging Continents: The RDDC Executive Director's Q4 2024 Journey to India and Europe
January 14, 2025 • 1 min read
Bringing Trials to Patients Could Improve Inclusivity in Rare Disease Research
November 01, 2024 • 2 min read
New Findings on Inequities in Rare Diseases: How They Impact Research and Clinical Trials Processes
October 11, 2024 • 2 min read
Empowering Change Through Health Equity: Reflections from UCB’s Health Equity Expo
September 27, 2024 • 3 min read
Eve Kakudji – My experience as an RDDC Fellow
RDDC News & Announcements
September 26, 2024 • 2 min read
Elijah Richardson – Working with the RDDC and Undiagnosed Diseases Network
RDDC News & Announcements
March 29, 2024 • 2 min read
Elijah Richardson - 2024 Fellowship Blog
RDDC News & Announcements
March 29, 2024 • 2 min read
Eve Kakudji - 2024 Fellowship Blog
Fellows
March 08, 2024 • 2 min read
Amplifying Our Impact: 2nd Annual RDDC Rare Disease Day Reception
February 23, 2024 • 3 min read
Addressing Health Disparities in Rare Diseases through Comprehensive Data Collection -Executive Summary
RDDC News & Announcements
February 22, 2024 • 2 min read
Rare Disease Diversity Coalition to Host 2nd Annual Rare Disease Day Reception
RDDC Events
February 20, 2024 • 1 min read
Diversity, Equity, and Inclusion (DEI) Organizational Readiness Quiz
December 27, 2023 • 2 min read
Greetings from New Mexico
December 27, 2023 • 2 min read
A Transformative Experience at the 2023 APHA Conference: Shaping the Future of Public Health
RDDC Reflections
December 27, 2023 • 2 min read
Global Genes and RDDC - RARE Health Equity Forum Essay Equity in Action: Moving Rare Forward
December 27, 2023 • 2 min read
Global Genes Rare Health Equity Forum, San Diego, September 18-19
RDDC Reflections
December 27, 2023 • 2 min read
RDDC Scholarship Recipient, Bijaya Mishra
RDDC Reflections
December 05, 2023 • 4 min read
RDDC 2023 Rare Disease and Health Equity Scholarship Recipients.
RDDC News & Announcements
October 24, 2023 • 4 min read
Rare Disease Innovation and Partnership Summit 2023 Panel
RDDC News & Announcements
October 24, 2023 • 1 min read
RDDC Inaugural Rare Disease Day Reception
RDDC Events
July 10, 2023 • 1 min read
2023 Rare Disease Day Reception
RDDC Events
May 24, 2023 • 2 min read
Mental Health Awareness Month
RDDC Reflections
March 03, 2023 • 2 min read
Meet Dr. Aditi Kantipuly, RDDC Rare Disease Fellow
Fellows
March 03, 2023 • 2 min read
Meet Rewaa Elgazar, RDDC Rare Disease Fellow
Fellows
March 03, 2023 • 1 min read
RDDC announces Rare Disease Fellows
Fellows
February 28, 2023 • 0 min read
Boston Herald published the Rare Disease Day op-ed
RDDC in the News
December 22, 2022 • 2 min read
Students seek solutions to clinical trial equity challenges at BioNJ competition
RDDC Reflections
November 18, 2022 • 1 min read
2022 RARE Health Equity Summit: Partners in Action - November 9-11, 2022(Recap + Gallery)
RDDC Events
October 20, 2022 • 2 min read
New Leader Chosen to Direct Coalition Serving Diverse Rare Disease Patients; Will Give Remarks at Global Genes RARE Health Equity Summit November 9-11th
RDDC News & Announcements
October 13, 2022 • 2 min read
RDDC and NORD Announce New Partnership to Help Identify Barriers for RareDisease Patients and their Caregivers
RDDC News & Announcements
October 06, 2022 • 3 min read
Global Genes and Rare Disease Diversity Coalition Launch Next Phase of Multifaceted Partnership Aimed at Accelerating and Advancing Health Equity
RDDC News & Announcements
April 22, 2021 • 0 min read
Insights: Improving Hispanic Health Outcomes, A Conversation With Dr. Elena Rios
RDDC in the News
April 16, 2021 • 2 min read
Howard University President Dr. Wayne A. I. Frederick To Deliver Remarks On Advancing Health Equity In Communities Of Color To Rare Disease Organization
RDDC News & Announcements
November 18, 2020 • 2 min read
Black Women's Health Imperative Announces The Rare Disease Diversity Coalition's "RISE For Rare" Campaign
RDDC in the News
July 29, 2020 • 4 min read
Fighting Injustice in Health Care for Black Women and Diverse Rare Disease Patients
RDDC Reflections
June 10, 2020 • 0 min read
Coalition Will Address Racial Disparities in Rare Disease Communities
RDDC in the News

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